Click below to learn more about Dravet syndrome |
|---|
|
IDEA League
www.idea-league.org
The Internation Dravet and Epilepsy Action League is an organization that is dedicated to raise awareness and find a cure for the syndrome. If you would like to donate to the IDEA League to help Haley and others like her you can do so through this link. Posted at 9:49pm on Sun, Dec 07 2008
|
|
Dravet Syndrome by Dr. Charlotte Dravet
www.ilae-epilepsy.org/ctf/dravet.html
Posted at 9:53pm on Sun, Dec 07 2008
|
Helpful Links |
|---|
|
Sleep Safe Pillows
sleep-safe.co.uk/index.htm
Anti-suffocation pillows designed for individuals with epilepsy. Posted at 8:19am on Mon, Dec 29 2008
|
|
Cooling Vests
www.coolsport.net/index2.html
Posted at 8:20am on Mon, Dec 29 2008
|
Click below to support the Haley and the IDEA League |
|---|
|
IDEA League
idea-league.org/contribute.html
Make a donation to the IDEA League and help to support the research they are doing on Dravet syndrome. By clicking here you can help Haley and other children like her. Thanks in advance for your support. Posted at 2:03pm on Tue, Dec 09 2008
|
|
Beads of Hope
www.beadsofhope.net/
Help raise awareness for Dravet syndrome by purchasing and wearing these beautiful pieces of jewelry. Fifty-percent of the cost goes to the IDEA League! Posted at 9:55pm on Sun, Dec 07 2008
|
|
Give Ten
www.giveten.net
GiveTEN is a simple concept for a complex time. It's an all-for-one charitable program that pulls together ten different organizations - giving you an opportunity to benefit TEN groups at once! Whether it Posted at 2:46pm on Tue, Dec 01 2009
|
|
Capital One Charity Program for the IDEA League
https://www.cardlabconnect.com/IDEA League
You can now get your own "IDEA League" credit card through Capital One's Affinity Charity Card program. Applying for and using this card allows you to donate to the IDEA League on a daily basis in an effortless way. A full 1% of all purchases made with this card will go directly to our organization. The first purchase on any new account also earns an additional $25 for the League. This program will not only bring in revenue but also help with increased visibility for our organization and to spread the word about Dravet syndrome. Posted at 9:21pm on Sun, Dec 21 2008
|
Read about Haley's friends |
|---|
|
Ryan
smithryan.webs.com
Posted at 11:34am on Sat, Jan 24 2009
|
|
Melorah
www.livingforgrace.com
Posted at 9:57pm on Sun, Dec 07 2008
|
|
Sydney
www.hopeforsydney.com
Posted at 9:57pm on Sun, Dec 07 2008
|
|
Vanessa
www.dravetsyndrome.com
Meet one of Haley's friends from Austrailia! Vanessa is a vivacious young lady who loves to hug. I got a great one from her while we were in Chicago for the IDEA League's Second Bi-annual Family and Medical Conference! Posted at 8:56pm on Mon, Dec 08 2008
|
|
Sarah
adreamforsarah.com/
Posted at 8:57am on Mon, Dec 22 2008
|
|
Sarah Jane
www.thesarahjanestory.com
Posted at 11:16am on Mon, Dec 22 2008
|
|
Jarod
shazzas.info
Posted at 8:24am on Mon, Dec 29 2008
|
|
Jakob and Colin
www.dravet-ohio.org
Posted at 8:29am on Mon, Dec 29 2008
|
|
Jordan
www.livingwithdravets.com/
Posted at 11:50am on Sat, Apr 11 2009
|
|
Angelina
www.wishforangelina.org/
Posted at 3:35pm on Tue, Dec 01 2009
|
|
Lindsey
www.littlelindsey.net
Posted at 8:47pm on Tue, Jan 19 2010
|
|
Daniel
www.danielsdog.com/
Posted at 9:39pm on Tue, Jan 19 2010
|
|
Aiden
www.freewebs.com/angelaiden/
Posted at 10:32pm on Wed, Jan 20 2010
|
Miscellaneous |
|---|
|
Corolla Surf Shop
www.corollasurfshop.com
Haley's Uncle Gary's surf shop! If you find yourself in the Outer Banks of North Carolina stop in and say "hello"!~Haley Posted at 9:56pm on Thu, Dec 25 2008
|
|
Dream Catchers at the Cori Sikich Therapeutic Riding Center
www.dreamcatcherswilliamsburg.org
This has been one of the most fun things Haley has been able to do, therapeutic horseback riding. Posted at 11:36am on Sat, Jan 24 2009
|