Haley Is My Hero
"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles." ~ Christopher Reeves
Haley's Dravet syndrome Story
This video captures how playful and full of life Haley was as a toddler. She was a bright little girl who spoke early and could write her name at two years old. Sadly, today at nine years old, she still writes her name the same. We made this video to educate and raise awareness for Dravet syndrome. Our prayer is that another family will not have to wait through years of seizures without a diagnosis.
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Jill Huzzard Tatter
08:40 PM on February 19, 2010
Lisa, Haley is just so adorable! My son Caleb had a Grand Mal that lasted about two hours back when he was 8yrs old. I am so sorry that she and your family have to go through this and I hope a cure is found soon! I'll be praying for you all.
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Cousin Laura
02:46 PM on January 12, 2010
Lisa I will do everything I can to spread awareness of Haley's condition. My heart, thoughts and prayers go out to you, Haley and your whole family.
~Laura
~Laura
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