Haley Is My Hero

Tonight Dateline NBC aired the episode, Growing Hope, which highlighted "three moms" that changed VA law.  However, there were many others that were there to change the minds and hearts of legislators.  Without the whole team effort it would not have been possiible.  We were very blessed to be a part of this project.

Here are the links to the six segments:

Part 1:  

http://wric.com/2015/01/30/medical-marijuana-closer-to-being-legalized-in-va/

http://wtkr.com/2015/01/28/virginia-mom-fights-for-cannabis-cure-for-ailing-daughter/

http://wtvr.com/2015/01/22/child-lobbying-for-medical-marijuana-has-seizure-at-general-assembly/

http://rvamag.com/articles/full/24192/child-has-seizure-in-the-middle-of-senate-hearing-on-medical-marijuana

This photo caught the me swiping her VNS with the magnet to stop the seizure.

http://www.wusa9.com/story/news/local/virginia/2015/01/22/med...

https://delegatedavealbo.wordpress.com/2015/01/22/medical-marijuana-for-epilepsy/" target="_blank">http://https://delegatedavealbo.wordpress.com/2015/01/22/medical-marijuana-for-epilepsy/

http://www.wric.com/story/25121429/support-for-medical-marijuana-growing-in-virginia

We received a phone call today from the local ABC Richmond, VA station.  They had wanted to come out and interview us, but due to time constraints they had to do a phone interview.  Mark Tenia, the ABC reporter, did a great job of p...

http://wtvr.com/2014/03/05/va-mom-wants-pot-for-sick-girl/

As Dravet syndrome progresses, the seizures migrate to nocturnal episodes.  At this point in Haley's life ANYTIME she falls asleep, the seizures seem to appear.  It is either in small twitches or a full generalized tonic clonic.  This is just one week of seizures that we saw at the end of Februar...