Haley's Dravet Syndrome Story

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  • Our Story of Dravet
    by Haley's mom on June 11, 2011 at 9:16 PM
    4740 Views - 1 Comment

    This video captures our journey with Dravet syndrome.

  • Haley's Dravet syndrome Story
    by Haley's mom on November 9, 2009 at 6:58 AM
    11478 Views - 10 Comments

    This video captures how playful and full of life Haley was as a toddler. She was a bright little girl who spoke early and could write her name at two years old. Sadly, today at nine years old, she still writes her name the same. We made this video to educate and raise awareness for Dravet syndrome. Our prayer is that another family will not have to wait through years of seizures without a diagnosis.

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