Our Sister, Haley

This video was made with the intention to show it to the kids at Haley's school. We wanted to explain "Haley" and Dravet syndrome to them. Originally I was going to have Haley's brothers narrate the video, but the microphone did not cooperate. I appreciate how helpful they were in this project!!

Posted by Haley's mom on March 5, 2011 at 2:03 PM 4379 Views

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1 Comment

Reply Christine Lintvedt
8:26 PM on March 18, 2011 
I was looking at this site after you mentioned it in one of your posts on the DS support group page. What an amazing and powerful video this is, Lisa! Nobody should have to endure all that Haley has in her young life...but she perseveres and her strong spirit truly shines through in all the pictures you show in the video. Haley should be everybody's hero!!!