Growing Hope
Tonight Dateline NBC aired the episode, Growing Hope, which highlighted "three moms" that changed VA law. Â However, there were many...
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Haley Is My Hero
"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles."
~ Christopher Reeves
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haleyismyhero
- Jan 30, 2015
- 1 min
Virginia Mom Fights for Cannabis Cure
http://wtkr.com/2015/01/28/virginia-mom-fights-for-cannabis-cure-for-ailing-daughter/
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haleyismyhero
- Jan 30, 2015
- 1 min
Medical Marijuana Closer to Being Legalized in VA
http://wric.com/2015/01/30/medical-marijuana-closer-to-being-legalized-in-va/
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haleyismyhero
- Jan 25, 2015
- 1 min
Child Lobbying for Medical Marijuana has Seizure at General Assembly
http://wtvr.com/2015/01/22/child-lobbying-for-medical-marijuana-has-seizure-at-general-assembly/
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haleyismyhero
- Jan 25, 2015
- 1 min
Delegate Dave Albo On Medical Marijuana for Epilepsy
http://delegatedavealbo.wordpress.com/2015/01/22/medical-marijuana-for-epilepsy/" target="_blank">http://http://delegatedavealbo.wordpres...
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haleyismyhero
- Jan 25, 2015
- 1 min
Families Plead for Medical Marijuana
This photo caught the me swiping her VNS with the magnet to stop the seizure. http://www.wusa9.com/story/news/local/virginia/2015/01/22/m...
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haleyismyhero
- Jan 25, 2015
- 1 min
Child Has Seizure in Middle Of VA Senate Hearing
http://rvamag.com/articles/full/24192/child-has-seizure-in-the-middle-of-senate-hearing-on-medical-marijuana
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haleyismyhero
- Mar 31, 2014
- 1 min
Fighting to Educate
http://www.wric.com/story/25121429/support-for-medical-marijuana-growing-in-virginia We received a phone call today from the local ABC...
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haleyismyhero
- Mar 6, 2014
- 1 min
Back in the News
http://wtvr.com/2014/03/05/va-mom-wants-pot-for-sick-girl/ Haley made the news again. Â We were thankful that the story did have a more...
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haleyismyhero
- Mar 5, 2014
- 1 min
Nap-time/Nocturnal Seizures...
As Dravet syndrome progresses, the seizures migrate to nocturnal episodes. Â At this point in Haley's life ANYTIME she falls asleep, the...
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haleyismyhero
- Feb 24, 2014
- 1 min
IN THE NEWS!!!
Our fight for medical cannabis made the local news out of Norfolk, VA. Â The title was not exactly what we would have wanted, and the...
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haleyismyhero
- Jan 29, 2014
- 5 min
2013 Was a BLUR....of Seizures
Here I am on the 13th anniversary of Haley's first seizure and looking back not only over the 13 years, but the last year. 2013 by far...
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haleyismyhero
- Jan 29, 2014
- 3 min
13th Anniversary
Haley decided to start her "anniversary" off with a BANG! Â Fourteen seizures this morning. Â She had extra medication before bed and two...
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haleyismyhero
- Jun 16, 2013
- 3 min
VNS Surgery
Although we have known about the Vagus Nerve Stimulator since Haley was about five-years-old, we delayed trying it. Partly because our...
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haleyismyhero
- May 7, 2013
- 4 min
Thank you Obamacare!
Thank you Obamacare! The "Affordable Healthcare Act" has now made seeing Haley's Pediatric Neurologist/Epileptologist harder to get an...
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haleyismyhero
- Feb 29, 2012
- 1 min
Shiny Teeth
When Daddy arrive home yesterday Haley immediately said, "Daddy, I have shiny teeth!" Â It was a busy day yesterday that started off with...
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haleyismyhero
- Feb 20, 2012
- 6 min
Dravet Mommy Doctor
Prior to Haley's birth, my medical experiences were limited. My family was military and I have only have a handful of memories of going...
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haleyismyhero
- Feb 6, 2012
- 2 min
Back to "toothless"??
Wednesday morning was a very busy one...a seizure at 3:30 AM, another at 4:45 AM, went to the YMCA at 5:30 AM, ran over six miles, and...
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haleyismyhero
- Jan 29, 2012
- 3 min
Eleven years of seizures
January 29th is a day that will forever live on in our lives as the day that things changed. Â At the time we had no idea. Â Eleven years...
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Haley's mom
- Jan 20, 2012
- 4 min
2011~A Year in Review
Flash version 9,0 or greater is required You have no flash plugin installed Click here to download latest version One of my New Year’s...
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