Growing Hope
Tonight Dateline NBC aired the episode, Growing Hope, which highlighted "three moms" that changed VA law. However, there were many...
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Haley Is My Hero
"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles."
~ Christopher Reeves
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haleyismyhero
- Jan 30, 2015
- 1 min
Virginia Mom Fights for Cannabis Cure
http://wtkr.com/2015/01/28/virginia-mom-fights-for-cannabis-cure-for-ailing-daughter/
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haleyismyhero
- Jan 30, 2015
- 1 min
Medical Marijuana Closer to Being Legalized in VA
http://wric.com/2015/01/30/medical-marijuana-closer-to-being-legalized-in-va/
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haleyismyhero
- Jan 25, 2015
- 1 min
Child Lobbying for Medical Marijuana has Seizure at General Assembly
http://wtvr.com/2015/01/22/child-lobbying-for-medical-marijuana-has-seizure-at-general-assembly/
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haleyismyhero
- Jan 25, 2015
- 1 min
Delegate Dave Albo On Medical Marijuana for Epilepsy
http://delegatedavealbo.wordpress.com/2015/01/22/medical-marijuana-for-epilepsy/" target="_blank">http://http://delegatedavealbo.wordpres...
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haleyismyhero
- Jan 25, 2015
- 1 min
Families Plead for Medical Marijuana
This photo caught the me swiping her VNS with the magnet to stop the seizure. http://www.wusa9.com/story/news/local/virginia/2015/01/22/m...
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haleyismyhero
- Jan 25, 2015
- 1 min
Child Has Seizure in Middle Of VA Senate Hearing
http://rvamag.com/articles/full/24192/child-has-seizure-in-the-middle-of-senate-hearing-on-medical-marijuana
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haleyismyhero
- Mar 31, 2014
- 1 min
Fighting to Educate
http://www.wric.com/story/25121429/support-for-medical-marijuana-growing-in-virginia We received a phone call today from the local ABC...
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haleyismyhero
- Mar 6, 2014
- 1 min
Back in the News
http://wtvr.com/2014/03/05/va-mom-wants-pot-for-sick-girl/ Haley made the news again. We were thankful that the story did have a more...
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haleyismyhero
- Mar 5, 2014
- 1 min
Nap-time/Nocturnal Seizures...
As Dravet syndrome progresses, the seizures migrate to nocturnal episodes. At this point in Haley's life ANYTIME she falls asleep, the...
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haleyismyhero
- Feb 24, 2014
- 1 min
IN THE NEWS!!!
Our fight for medical cannabis made the local news out of Norfolk, VA. The title was not exactly what we would have wanted, and the...
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haleyismyhero
- Jan 29, 2014
- 5 min
2013 Was a BLUR....of Seizures
Here I am on the 13th anniversary of Haley's first seizure and looking back not only over the 13 years, but the last year. 2013 by far...
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haleyismyhero
- Jan 29, 2014
- 3 min
13th Anniversary
Haley decided to start her "anniversary" off with a BANG! Fourteen seizures this morning. She had extra medication before bed and two...
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haleyismyhero
- Jun 16, 2013
- 3 min
VNS Surgery
Although we have known about the Vagus Nerve Stimulator since Haley was about five-years-old, we delayed trying it. Partly because our...
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haleyismyhero
- May 7, 2013
- 4 min
Thank you Obamacare!
Thank you Obamacare! The "Affordable Healthcare Act" has now made seeing Haley's Pediatric Neurologist/Epileptologist harder to get an...
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haleyismyhero
- Feb 29, 2012
- 1 min
Shiny Teeth
When Daddy arrive home yesterday Haley immediately said, "Daddy, I have shiny teeth!" It was a busy day yesterday that started off with...
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haleyismyhero
- Feb 20, 2012
- 6 min
Dravet Mommy Doctor
Prior to Haley's birth, my medical experiences were limited. My family was military and I have only have a handful of memories of going...
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haleyismyhero
- Feb 6, 2012
- 2 min
Back to "toothless"??
Wednesday morning was a very busy one...a seizure at 3:30 AM, another at 4:45 AM, went to the YMCA at 5:30 AM, ran over six miles, and...
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haleyismyhero
- Jan 29, 2012
- 3 min
Eleven years of seizures
January 29th is a day that will forever live on in our lives as the day that things changed. At the time we had no idea. Eleven years...
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Haley's mom
- Jan 20, 2012
- 4 min
2011~A Year in Review
Flash version 9,0 or greater is required You have no flash plugin installed Click here to download latest version One of my New Year’s...
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Haley's mom
- Mar 19, 2011
- 1 min
Haley rides a bike!
Flash version 9,0 or greater is required You have no flash plugin installed Click here to download latest version Haley's school physical...
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Haley's mom
- Mar 18, 2011
- 2 min
Lancaster Middle School students are "Heroes" for Haley
The Lancaster School SCA presented Haley with a check for $800.00 in her honor. The SCA hosted a "Social" for their classmates with...
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Haley's mom
- Mar 18, 2011
- 5 min
It's HERE!!!
After years of talking about the elusive drug, Stiripentol (Diacomit), we finally have it in our possession!! It has been a long and...
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Haley's mom
- Mar 10, 2011
- 2 min
Timing of Diagnosis
Everyone's journey is different with this syndrome. We traveled a long road full of hope that Haley would out grow her seizures and be a...
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Haley's mom
- Mar 9, 2011
- 1 min
Blessed by friends
I am constantly humbled by the members of our community that want to reach out and help Haley. Today a friend shared a website that they...
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Haley's mom
- Aug 20, 2010
- 2 min
Happy 10th Birthday Haley!
When you were born, Haley, I had dreams of my life with my little girl. However, those dreams were soon shattered and replaced with new...
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Haley's mom
- Mar 6, 2010
- 2 min
Spring Cleaning
We are in the process...or should I say, we have always in the process of remodeling here. Such is the life of being married to a...
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Haley's mom
- Jan 20, 2010
- 2 min
Update on Haley
Well the last post on December 2, 2009, we had gone those five days without a seizure. I don't think it was more than an hour after I...
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Haley's mom
- Jan 20, 2010
- 1 min
Haley M. Smith Research Fund
We have been so blessed by our community's support and generosity over the years that we have decided to start a research fund in Haley's...
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Haley's mom
- Dec 2, 2009
- 1 min
Five Days
Wow, I am on pins and needles waiting for the next seizure. It is awful to say, I know, but when they have been coming with some...
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Haley's mom
- Nov 21, 2009
- 5 min
Haley's video story and other thoughts
As I see so often posted in blogs...wow, it has been awhile since I last wrote... Time flies when you are having "fun". Well, not...
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Haley's mom
- Sep 24, 2009
- 3 min
Just an update on drugs....
Where does time go? I have meant to write to let you all know how things are going with Haley and our family. Thanks to all of you that...
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haleyismyhero
- Feb 27, 2009
- 5 min
Another new drug...
Haley started a new medication last week. The new addition brings her pharmaceutical “cocktail” up to a four drug mixture. Haley has...
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haleyismyhero
- Jan 6, 2009
- 3 min
Haley's "New Feet"
One of the co-morbid conditions that come along with Dravet syndrome seems to be flat feet with ankle pronation (ankles turning...
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haleyismyhero
- Dec 16, 2008
- 1 min
Thank you David Nova, Edie Jett & Team Marlin Maniac
We had an awesome weekend in Virginia Beach! We were invited by David Nova to attend the American Striper Association's (ASA) final...
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haleyismyhero
- Dec 8, 2008
- 3 min
December 2008
"How are your kids doing?" Is a question I hear almost daily. I know some hesitate to ask because they do not want to hear bad news...
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